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The following websites provide additional information about type 1 Gaucher disease, and, in some cases, give you the opportunity to connect with others:
A group of organizations dedicated to strengthening awareness about genetic diseases through research and education. Also provides care for those directly affected by a rare disease.
Provides information on research, financial assistance, education and awareness, legislative issues, outreach programs, as well as live web-based meetings, national conferences, and patient meetings.
Contains information about diseases, referrals to patient organizations, research grants and fellowships, advocacy and medication assistance programs, and networked peer-to-peer support for Gaucher.
Provides assistance in helping people find genetic counseling in their area.
A Shire-sponsored site offering comprehensive, personalized product services and support for eligible patients who have rare diseases, as well as for their families and care providers.
A unique social hub that helps build communities for patients and families affected by rare disorders, including Gaucher disease, and their healthcare professionals.
VPRIV® (velaglucerase alfa for injection) is a prescription medication indicated for long-term enzyme replacement therapy (ERT) for patients with type 1 Gaucher disease.